Right now I am not sure though. It could be this cough that I have been draging around with like a wheelbarrow of tiring pain, it could be the fact that I have had to reduce my student loans and that I am financally not safe at all. Or it could be the feeling that there is very little reciprocity in my life. Don't get me wrong, there is a lot of it in some places and from some people, and I am hoping to get remarkably more of it from others in my life. And I am grateful nowadays for all that comes without a fight.
However, last night I reduced was to a wailing mess. There was very little understanding and I felt the pit that I had been in for all of winter open up again. Things are so far away here, I never seem to do enough, or be well or focused enough to do enough. And aparently it's my fault. There is very little understanding of what my body and I need in order to form that team that other peoples bodies form everyday, all the time, from birth. And it hurts the most to be less than understood by someone I imagined would be close.
I have only just realised this myself. How much I need rest, how much I need activities that fit me and make me feel good, how much I need activities in my life that work for me instead of againts me. That invigorate me instead of draining me. I have just now begun to realise myself just how hard I have always pushed myself to keep up, and what a rest it has been to be around people who genuinly understand, especially since the people who really do aren't even disabled themselves.
It's uncomprehendably painful then, to be told
Well dont you think you need to get out...?
Especially since I have just been out, especially since I had no need of getting out. And you know what it doesn't matter. I have coughed my heart out, I have an exam next week and I will stay in as much as I would like. You see I don't go for a walk all that much, in fact I don't walk all that much, or well, in case you hadn't noticed.
Lately I have been thinking about a wheelchair. I haven't told anyone, but right now I will tell the ether. I haven't told anyone since it is such a lifechanging descion. It will limit me, limit where I go, where I live, who I see and when, it will limit my sense of my body, of agency and saftey and it's a descision you will never have to make.
I am far too nice, I know. I am far too generous, no I am not generous at the worst of times, I am stupid. It's true I am a died in the wool provider, and I care through giving and put others ahead of myself. And it's truly one the assets that I am most proud of when it comes to myself. However, right now I just wonder whenever I will get back, and why it always comes to this, why I work my providing knees to the bone paving the streets with gold for other until I realise.
I don't really have time to write this post though, eventhough I needed it. I need to hit those books again, because you see, yesterday, bawling between the sheets I realised that true work and progress is the best kind of resistance. Success' the only thing I have got, and it will demand hard work, and it will demand prioritizing - me!
Honey, I can so totally understand, you know I have still to send off the form for the badge as for me it is that final step in cripness. But- this winter has been so awful and just worn my resistance down.
SvaraRaderaGo for the invigorating activities, go for the things that give you energy. I also recall that someone known to both of us said that making that step into a wheelchair gave her so much energy to do the things she wanted and not have to worry about expending energy just getting there. You may find the limitations of where you live and what you do are less than you imagine.
I'm going for the perma-cane look, realising that walking around without is a recipe for more falls, sprains and cramps. Luckily I can still get away without indoors for the most part (stumbling into people in a shop is generally excused, in the streets it's a bit more scary).