fredag 17 juli 2009

This day has been really really odd. I think it has much to do with last night future despair, I sat around in this empty manison looking at my messages from Uni realising they wanted me. I looked at all the forms for apartments and PA's that I had printed out and I worried, worried, worried. I worried about not getting an apartment- that all the benefits I had been told I had due to my disability wouldnt do. I worried about the fact that there is pretty little time until the courses start and I know just how tricky all these kinds of things are. It will take time, and I will likely just have done before I start.

I don't talk much about this, but it's true- right now things are unfair. And only unfair because I am a disabled. I can not go down to Uni thinking it will work out, there is no such thing as
"it's okay I can stay a bit with Jane Doe and then see what I can do about that once I get there. For me things have to be:
"Okay, I need an apartmen that is set up to work for me, it needs to be close to Uni and the tube. I need a PA (or several) that work for me and listen to my needs in order for me to study well. I need a taxi card
...and I need money...what if I cant study full time, can I fund my life in the city by other means?"

Because I dont talk about these kinds of things alot with able-bodied friends I dont think about it much myself either. Therefore, I think it has just now struck me. And it makes me so nervous. To think that all these things might not work out and my courses start at August 25th.

I have been in touch with all kinds of people (who of course are on vacation an will return on Monday) and I have done what I can with all of this for now. But still- I am known for worrying a lot and this really eats away at me.

Making vain attempts to put my mind elsewhere I have been trying to write a new chapter for my Fishy Femme Fiction, pretty needless to say it hasn't worked out well.
And that's also why I wrote this post. I needed space to ramble and I refuse to stare at that more or less empty Word document for much longer.

I really do have faith that all these things will work out one way or another. Still, I hate this feeling of being hog-tied by my own disability. I just want to able to crash down into this city and take it by storm.

Now I'll see what I can do about the state of this kitchen, and enjoy another night of freedom in the rual mansion. And I want do write. In opposite to- I will write

1 kommentar:

  1. Hi darling,
    I am so sorry that you are put in this situation by institutions that don't consider what people truly need from them. I really hope that you can feel better and get all the support you deserve and need. And you have good friends in Stockholm who are here for you and ready to help and support you in whatever ways you need too.
    Just say the word and we will mobilise all our resources and get it DONE with you!
    With love and feeling very peppy on your behalf.
    xxx Josephine

    SvaraRadera