The reason it’s slow is not my own, I have read up on all the literature I have made an outline, and I have written half of it already. No, it’s not me; it’s what’s around me these days.
You see a concentrating as a crip demands a different kind of attitude then concentrating overall. Right now I need to concentrate despite being confined in this apartment until I get my new taxi card, which I so slow I haven’t even gotten to sending in the applications yet. You see, before I actually do that I need a medical permit, and to get that medical permit I need to go see a doctor, and to see a doctor I need to leave the house, and yes when leaving the house I might need a taxi-card.
I have arranged things with my PA’s so that I at least can get my self to and from University for my lectures. Otherwise I have no idea. And all the people I call and ask about this, the people I assume should know how things work and be able to give me straight answers about when and how and why and where, they seem to know just as much as me or even less.
It always puzzles me how they can say things that are so bizarre you wonder if your life is a sitcom or it the person on the other side is an alien with no manners whatsoever.
Now follow, an authentic conversation just had today…
I: But how do I make this work? I am stranded in my apartment otherwise!
Bureaucracy of Babylon: Well I don’t know, people don’t move here often…..
What in heavens name is that! Well know I don’t know what to do when a hurricane hits, you know we don’t get that often. Oh you say you’re dying, oh well that has never happened before.
You are saying you are unable to leave your apartment other than together with your PA’s and only at the times that you have scheduled them to come and pick you up…oh well, you are saying there is from now on no spontaneity in your life. You worry about being isolated. Well you see, I couldn’t help you even with the simplest questions about that, people don’t move here often so I wouldn’t know.
Well, let me tell you why people don’t move here often. It’s because this bureaucracy of Babylon is a set of bondage ropes around my shivering arms, it’s because you cripple me and make me invalid. You make sure my studies are not worthwhile, you make sure my concentration is lacking since I need to take breaks to cry and scream with worry.
You make me question if my time is well spent in this city when there is nothing but trouble here. You make me stare at this screen at the black words hammered down on the electronic whiteness through a haze of tears and anguish.
I am not built for this, I worry too much anyway. My heart is that of a rabbits, jumping quickly under collar bone. My constitution is one in need of safety and warmth. Uncertainty makes me ill.
Somewhere I do realise that this is a dam breaking. I haven’t cried about any of the hardships I have encountered since I moved here, I have only pondered through stoically, so I should have seen it coming now. When am partially safe in my own home and most of the things work out for me, then there is a space for me to crash like this.
I came to this town with visions, and I do still keep them. I am sorry Babylon but there is now way in which you will break me. I know you aspire to do that, even if you haven’t verbalized it for yourselves yet.
You think that crip girls like me are satisfied with little. Well, dearest Babylon – listen up when I say I am never satisfied. That is also part of my constitution. That of the escapist dreamer who saw herself dressed in Victorian velvet walking through the vast room of a mansion when she grew up. You say that is way too much. You say I should settle in with a day job and a few swims in the heated disabled people’s pool for leisure activities.
I say give me that mansion. Give me that an apartment in the city. Give me spaces to write and perform within. Give me my lovers’ heated kisses on my neck, give me the traces of my presceans across their bodies. Give me whisky; give me the force of darn good song. Give me the softness of tea and milk and the warmth of my army.
Give me all the heavy scented perfumes there ever was in the world.
GIVE ME MY LEATHER!
Bless my family, my army, my muses and my flexible PA’s when all is madness as it so now.
And I know there are loving people above me, who brush away the clouds gently as they look down, there is a face that looks like mine, there is curly hair and swelling hearts and there is a great uncle.
Who looks at me as he smiles, because he knows what fighting is, and perhaps he wished he could have gotten all that I have know. I wish I could have met him, we could have sang songs; he could have told me it was going to be hard, this crippled life.
But now, as she his fringe falls in his eyes, and I recognize the shape of my own lips on his face I know that he’s saying.
På dôm lisch jänta!
(Go get them little girl!)